About the Children’s Brain Tumor Foundation

The Mission of the CBTF

Roughly one-third of kids around the world who are diagnosed with cancerous brain tumors do not live beyond the age of five. It is the deadliest childhood cancer, yet research for this disease is one of the most underfunded. The Children’s Brain Tumor Foundation is a non-profit organization founded in 1988 by dedicated parents, physicians and friends. CBTF’s mission is to improve the treatment, quality of life and long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors.

Education

Knowledge is critical for families to access expert care and ensure quality of life. The CBTF’s free publication Finding Your Way: A Guide for Childhood Brain Tumor Families is now in its sixth edition. CBTF also co-sponsors conferences to provide families, survivors and health care professionals the latest research, treatments and strategies for moving forward.

Support and Advocacy

When information and community resources are shared, families and young survivors find ways of adapting and then improving their lives. The CBTF offers a toll-free support line that connects directly to trained pediatric neuro-oncology social workers. Face-to-face support groups allow families to share their experiences with other families experiencing similar dilemmas. Parents become stronger advocates for their children, and survivors become stronger advocates for
themselves.

Research

Only through scientific research will we identify the causes of, and effective treatments for brain tumors in children. The CBTF funds cutting-edge research by respected scientists at top academic medical centers nationwide. Their continued dedication and resultant discoveries hold the promise of improving the lives of affected children today, and discovering the means of prevention for future generations. In its 30-year history, the CBTF has awarded over $10.5 million in grants for scientific research related to pediatric brain and spinal cord tumors.

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